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Updates
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To View past years:
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We went to the Easter Party today for homebound kids. It was lots of fun! Ms Kiristy went
with us and Ms Debi came there too! I had some icing and a little bit of cake. The cake was good but I really liked the icing.
I made a sun catcher and a bunny windsock. We also played some games and had an egg hunt. I missed the hunt because I had
to have my lunch. Ms Amy hunted for me and got me lots of goodies! I have great people taking care of me!!!
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Momma measured my height today. I'm 41 1/2 inches tall! Guess that's what happens when you
get good breaths and good food...(and tasty suckers!)
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I went to see Dr. Miller today! He's a really nice guy... he checked under my tongue to see
what it looked like. I've been sticking my tongue out alot and it has a funny cut there. Momma even worried my tongue would
fall out of my mouth. Dr. Miller told her and Ms Debi to put a mix of Kaopectate and Benedryl on it. It sounded strange
to all of us but he said do it, so I know they will. Then he checked this funny spot next to my top left jaw tooth. It looked
like a mini skin balloon. He said it didn't look too bad as it wasn't bleeding or seemed to hurt me but he wants to see me
again in a few weeks.
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Gramma Walker and Uncle Chad came by today! Uncle Chad was going to Baton Rouge so he offered
Gramma a ride to see me and she came! Uncle Chad came in to change and he talked to me a bit. Gramma's going to spend the
night.
While Gramma was here, a nice lady named Ms Sharon from the Vent Assist Program came
by. She wanted to make sure that I was getting all I needed and to make sure Momma was not needing anything.
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Went to see Dr. Bruno today. I cut up big time for Dr. Bruno! Gramma went with us. We all
got cold in the waiting room but we got warmed up. We went to eat lunch at Burger King then Uncle Chad came to pick up Gramma.
I was sad to see them go home. Maybe next time they can stay longer.
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I went to see Dr. Accousti today! He's
really nice. He's going to get a picture of my back. He wants to make sure my spinal cord is ok before he helps my back to
be not as crooked.
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Today was my last dose of Viagra! Woo Hoo!!! One less medicine to take. I kinda like this
button thing in my belly. I don't have to taste all that ucky medicine : )
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Today I went to get my 'boots' fitted (They're really called AFO's but Mommy is trying to
trick me... Ha!) I laughed so hard at Ms Christie that she almost couldn't get them on me. She was a good sport and I sort
of let her do her thing. I was kinda tired from all the laughing...
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Today we went to Our Lady of the Lake in Baton Rouge. Momma said I didn't have to stay a
long time like I did last time. I wasn't too sure about being there. Momma said Dr. Thomas was going to look down in my lungs
to make sure they were doing good and to put my new, custom trach in. I cut up for him when he came to see me just before
the nice ladies in PACU got me a bed. I was talking and giggling big time once I got to lay down! Then before I knew it, I
was looking at Mom and Pop! I wasn't too sure about this new trach but I did get lots more air in my lungs. I could really
laugh now!
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I decided I didn't like this custom trach all that much. Yesterday I turned my head enough
that it came out. When Momma and Ms Brenda and Pop tried to put it back, I wouldn't let it. They put my standard back in.
Momma called Dr. Thomas' office and they told her to let my neck rest until the next trach change. She was not upset at all
to hear that.
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May 27, 2009
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I went to see my dentist, Dr. Miller today. He said my mouth looked good and the funny bump
thing on my upper gum was nearly all gone. He said the ulcer looked good too. He told Momma to bring me back in 6 months...
He's really, really nice!!
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